Wheelchair Not Properly Assessed
I have SMA and a full spinal fusion and required a properly assessed wheelchair with specialist seating support. At no point was I given a seating assessment, despite this being essential for my condition. The wheelchair supplied did not meet my postural needs and has contributed to ongoing issues from increased mechanical stress through my spine.
On delivery, there was no proper check that I was correctly positioned. I have blamed myself at times, but I did ask the right questions for my needs. Additionally, the headrest was fitted while my head was allowed to fall backwards.
I was later told I had requested a less supportive setup because I was “going travelling”, which is not accurate. My chair is approximately 90kg, non-folding, and not designed for travel in that way. I also understand the company does have a seating specialist, so I am unclear why I was not referred to them for assessment, rather than having my setup managed without that specialist input and more as a product provision. Other seating specialists I have seen since have expressed surprise that I was placed in that system.
As someone completely non-ambulant who remains in their wheelchair at all times (including in the car), I would expect a clinical-level seating assessment as standard. Instead, I was left with equipment that was not suitable for my needs. I will now always seek a fully assessed setup with physiotherapy involvement.
In response to the reply:
You called me once; because I struggle to speak on the phone, we then communicated by email.
The 90kg wheelchair doesn’t fold. I have a severe neuromuscular condition and travel while seated in my wheelchair. My symptoms began shortly after being placed in the seating system you sold me, despite no seating assessment being carried out. Given my complex needs, I cannot understand why I was not referred to a seating specialist or offered a proper assessment.
The NHS Wheelchair Service told me they do not approve seating systems, only issue vouchers. In addition, I had to visit a dealership in Australia because my wheelchair had been programmed incorrectly by your technician, with the forward and reverse speed settings configured the wrong way around, even though I flagged it and was told it’s fine it’s just new. The first half of my trip of a lifetime was ruined as was going at snail speed.
Specialists I have consulted since have all stated that someone with my condition should never have been moved to such a fundamentally different seating system without proper assessment and clinical oversight.
What I keep coming back to is that I specifically asked whether a canvas backrest would be suitable for me. You told me it would be, and I trusted your advice. By the time I recognised something was wrong and changed my seating, the damage had already been done. Every person I see in an electric wheelchair has solid appropriate seating and it’s upsetting I was not treated with care.
May 22, 2026
Unprompted review