I get emails that are saying your records has been updated but please read any paper letters you get. I then find that an appointment has been cancelled ( with no notification). I get a new appointm... See more
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Review summary
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What people talk about most
Reviews shaping this summary
The site is remarkably easy to use and the steps needed to achieve your goal are explained simply and accurately. I have been on many sites over the last few days and getting to where I want to go h... See more
I was having difficulty registering for PKB. I emailed, and was talked through - via email - what to do. Eventually my wife took over as nothing was working out, daily emails for over a week, until ev... See more
Company replied
Fantastic service and collaboration from the PKB team. The app is fantastic, and we chose to partner with them for many reasons, mainly because they are leading the way in the achievement of single pa... See more
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Company details
Information provided by various external sources
Patients Know Best (PKB) is Europe’s largest personal health record platform, enabling patients and healthcare professionals to access real-time health information - anytime, anywhere. As the world’s first patient-controlled personal health records system, PKB facilitates borderless, integrated care wherever the patient needs it. That means any healthcare provider, whether in another area of the country or another part of the world, can immediately access all the information they need to support improved clinical decision making and the best patient care. Everything from test results, care plans, real-time monitoring data and discharge summaries, to the patient’s own data - either uploaded from their journal, wearable devices or using symptom tracking, are all available in one patient record. This also reduces the need for professionals to request background information from the patient’s regular healthcare team. In 2020, PKB became the first personal health record (PHR) to integrate with England’s national health platform - the NHS App. This extends the NHS App’s current features and sharing of GP data, to allow patients to access PKB’s full health and care record and functionality, direct from the national NHS interface. For more information on the features and benefits of Patients Know Best, visit www.patientsknowbest.com or email enquiries@patientsknowbest.com.
Contact info
Cowley Road, CB4 0WS, Cambridge, United Kingdom
- help@patientsknowbest.com
- www.patientsknowbest.com
3.3
Average
645 reviews
No recent history of asking for reviews
This company hasn't invited customers recently, so reviews may not be representative
Replied to 47% of negative reviews
Typically replies within 2 weeks
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Must-have tool for overseas loved one
Living in Australia, 12,000 miles away from my husband's 93 year-old Mum, it makes ALL the difference (to us and to her) that she can use Patients Know Best to share her health information with us. We can keep an eye on what's going on and do a little background research if need be before we make a call to reassure. We can also monitor patterns and plan any travel we feel may be necessary down the track. Absolutely recommend, not quite sure how we managed without it.
February 4, 2025
Unprompted review
Reply from Patients Know Best
Thank you so much for your review! 🌟 It's fantastic to know that PKB is helping you stay connected and informed about your mother-in-law’s health, even from the other side of the world. 💙
Take care and best wishes,
Lisa
📧: help@patientsknowbest.com
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PKB is an organisation that empowers
PKB is an organisation that empowers patients by providing them with the information that is, sometimes, lacking in some medical encounters.
December 13, 2024
Unprompted review
Reply from Patients Know Best
Thank you, Timothy! 😊 We’re passionate about ensuring patients have access to their health information, so we’re glad to hear that PKB is making a difference for you. If you ever need support with your record, we’re here to help!
Best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Yet another NHS waste of time
Another rip off.
Another pack of lies.
Quote the email sent to me.
'Bradford District Care NHS Foundation Trust has invited you to access your medical information to help you manage your health. '
I thought it was about time I had access to MY full records.
I went through the usual garbage of trying to satisfy the machine that I actually am who I say I am, the same person they contacted.
I got to the end and was asked, 'Who do you want to have access to your records'.
No where was the option 'ME'
I really should have consulted the reviews of Trustpilot first.
February 7, 2025
Unprompted review
Reply from Patients Know Best
Hi Tony,
I’m sorry for any frustration caused. Your NHS Trust looks after your health record, and they are using PKB to provide you with secure access to a copy of your information. We don’t store or control your data, just provide a safe way for you to view and manage it.
Health records are usually stored on paper or in systems that patients can’t access. PKB puts you in control, letting you decide who can see your data and even restrict access if needed.
Please reach out to our support team, we'd really like to help.
Best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
A really useful resource
This is a really useful resource that shows when test results will be available. Then it breaks down the medical jargon/abbreviations and handily keeps scans and tests in separate folders meaning you can quickly check dates and details. I would recommend particularly for tracking any ongoing treatment.
February 7, 2025
Unprompted review
Reply from Patients Know Best
Thank you for the lovely review 😊 We're so glad PKB helps you track your results and ongoing treatment easily. If you ever need support with your PKB record, we're here to help!
Lisa
📧: help@patientsknowbest.com
Patients Know Best
This is a complete waste of time
This is a complete waste of time. There is no information on the site. You are led to believe its part of the NHS when its not its a private company. To close the account you have to contact your care team. I want to close my account. Went to the doctors, they didnt know what I was talking about. Avoid its just a way of gathering information. There is nothing of any use on the app. Stick to the NHS app.
Update.
I havd emailed you about this but you havnt answered
February 5, 2025
Unprompted review
Reply from Patients Know Best
Hi Susan,
I’m sorry to hear you’ve had a frustrating experience. PKB is an NHS-approved platform that helps patients securely access their health records. The data you see depends on what your NHS Trust shares. Some trusts are sending everything from appointments, test results, and care plans, while others are rolling things out in phases.
PKB also integrates with the NHS App, letting you view your hospital data alongside your GP record, all in one place.
If you’d like us to check what’s available for you and what’s coming in the future, please email us at help@patientsknowbest.com. We’re here to help!
Lisa
📧: help@patientsknowbest.com
Patients Know Best
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Whilst this app could be great
Whilst this app could be great , if hospital staff don’t add the information it is pointless. When I first started using this app all my medications, appointments and outcomes were posted. Now I have cancer diagnosis nothing is being added and I have to rely on the post to receive this information. The app should be automatic and updated according to my hospital record. This way all medical personnel and myself will have access to my records.
February 2, 2025
Unprompted review
Reply from Patients Know Best
Thanks for your review, Richard. It’s disappointing that information isn’t being shared with you via PKB, especially when you previously had everything in one place.
We give patients secure access to their health records, but updates rely on healthcare providers sharing the data. Since it sounds like your clinical team isn’t currently sending updates, our support team can look into this for you or contact them on your behalf to find out their plans. Please reach out on the email below, we're here to help!
Best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
The platform is incredibly useful
The platform is incredibly user-friendly, making it easy to access my test results and radiology reports from the hospital through a secure NHS Login.
One of the standout features for me is the graphical representation of blood tests. It's so helpful to track changes over time, allowing me to stay informed about my health in a clear and visual way. The visuals are not only appealing but also intuitive, making it easy to understand my data at a glance.
Having everything in one place eliminates the hassle of keeping paper copies, which is a huge relief. I highly recommend Patients Know Best to anyone looking for a streamlined and efficient way to manage their health information!
January 3, 2025
Unprompted review
Reply from Patients Know Best
Thank you for your sharing your experience! 🌟 It's great to hear you’ve found PKB easy to use, and that the graphs have made tracking your health easier. Having everything in one place can make such a difference, and we’re glad it’s been helpful for you!
Lisa
📧: help@patientsknowbest.com
Patients Know Best
It’s brilliant - it should be everywhere
It’s brilliant - not only could I get all my info, I could see the tests I had and then find out more about why I had had them and what the results meant.
Why aren’t all MY medical records so easy to access - everyone should be using this system.
I was treated at St Richard’s in Chichester and love that I can follow my health journey and look at what tests have been done (and rapidly get the results) but also like that I have then been able to share with other medical professionals I have seen eg my GP to ask relevant questions
August 19, 2024
Unprompted review
Reply from Patients Know Best
Thanks for your review! 🌟
It's great to hear that quick access to your test results, and being able to share your PKB record with professionals has been so helpful.
If you need any support with your record, we're here to help!
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Brilliant System, thanks so much
This is exactly what I've been waiting for. To have access to my info and to feel more in control eases the mind greatly. Looking forward to more.link up with the hospital to help me manage my AF treatment.
January 27, 2025
Unprompted review
Reply from Patients Know Best
Thank you for taking the time to leave a review! 🌟 We're so glad to hear that having access to your PKB record gives you peace of mind.
Lisa
📧: help@patientsknowbest.com
Patients Know Best
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What an absolute load of rubbish
What an absolute load of rubbish. Who has the time to wade through all the information and understand this system. We were logging onto our GP information through Patient Access and then also NHS log in and now another useless disorganised system. We don't want it or need it. We need one simple system that is just NHS. A high percentage of patients are elderly and do fully understand the internet or use a mobile phone. Many people including myself thought this was a scam organisation. Never heard of it and no information from NHS on it. Where does private treatment come into this system. What happens if some of your information is not at your local hospital and not signed up to the system. Do we have to join ? What a rubbish name for an NHS facility. Could we not have just one NHS system called NHS FULL PATIENT RECORD. I hope appointment letters continue to come by post or there will be a lot of missed appointments. People are already confused with appointments being sent by different means.Your local health authority must be paying this company to use it's system. What a waste of money.
January 14, 2025
Unprompted review
Reply from Patients Know Best
Thank you for sharing how you feel. I’m very sorry that this has been a frustrating experience for you.
I completely understand your discouragement towards using multiple systems. Advocating for a seamless, joined-up healthcare experience is a core part of our approach. Our social mission is to empower every patient to "know best" by accessing and understanding their health record and deciding who to share it with.
Currently, much of your medical information is stored on paper or within various computer systems that are inaccessible to you, the patient. PKB health records are patient-owned, giving patients more control and the ability to be actively involved in decisions about their care.
PKB brings together information from multiple services (i.e. hospitals, mental health clinics, GPs, private providers) into one secure platform. This helps to ensure you get the best care, avoiding unnecessary tests, appointments, and letters, which in turn, helps the NHS save money. Rest assured that appointment letters will continue to arrive by post unless you choose to read the digital copy.
It’s not mandatory to join, and your data remains safely managed by your healthcare providers, we just provide a secure way for you to access it. Please note that you can use your NHS login account to access PKB if you wish, and we're integrated with the NHS app.
If you’d like support or have any questions, please email us at help@patientsknowbest.com, we're here to help!
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Don't bother
Really hard to sign up- difficult to navigate and can't cancel appointments- total waste of time- Also they may well be mining your data
January 10, 2025
Unprompted review
Reply from Patients Know Best
Sorry to hear you’ve had a frustrating experience. Please get in touch with our support team on: help@patientsknowbest.com, we'd really like to help.
Appointments management is available in PKB via our NHS App integration. Not all NHS Trusts are live with this feature yet, but hopefully it'll reach you soon!
In the mean time there are many benefits to accessing your PKB record, have you read our user manual? https://manual.patientsknowbest.com/home
Finally, I want to reassure you that PKB does not control or sell your information. We work with healthcare providers/NHS Trusts to provide a secure patient record platform to help you access your data, and manage your health.
I hope this helps.
Take care and best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Stuart the support agent for Patient know Best
Stuart the support agent for Patient knows best gave outstanding support, help and advice to solve a tricky problem accessing this service
January 8, 2025
Unprompted review
Reply from Patients Know Best
Thank you so much for your lovely review, and for taking the time to share your experience 🌟 We're delighted Stuart was so helpful in resolving your issue. Now that you're logged in, we hope you’re finding it useful to access your health record 😊
If you ever need further assistance, please don’t hesitate to reach out - we’re here to help! 💙
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Absolute rubbish
Absolute rubbish. As if working people have the time to go to the doctors surgery, if you happen forget your password. I work 9-5 Monday to Friday and can’t access the surgery unless I take time off work. I can reset my bank account online, I don’t have to go into the bank. Why not medical sites. This service is a total waste of money. I’m a patient and I know best.
January 2, 2025
Unprompted review
Reply from Patients Know Best
Hi Dawn,
I’m sorry to hear that you’ve had a frustrating experience.
I’d like to reassure you that you don’t need to visit your GP surgery to reset your PKB password. You can absolutely reset this yourself, online, by answering some security questions.
If your security information isn’t accepted, the local PKB admins at your NHS Trust can help resolve this for you. You should hopefully find the contact details by searching the map in our user manual. However, if you're still unsure who to contact, please email our support team at help@patientsknowbest.com, and we’ll be more than happy to help 😊
You can also log in using your NHS login account details (but you'll need your PKB password the first time you do this)
I hope this helps and that you're able to log back into your record very soon.
Take care and best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
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Fake review
Test review - this is a fake I am just trying to see what TP does next
December 13, 2024
Unprompted review
A waste of time and money!
I have never understood the purpose of Patients Know Best - apart from harvesting our data!
It seems impossible to leave, impossible to log on, and they keep sending me emails about "new documents" which I get from the NHS anyway.
Who is paying these people - the hard-pressed NHS, I suppose
November 29, 2024
Unprompted review
Reply from Patients Know Best
Thank you for your feedback. We’re sorry to hear about your experience and would like to clarify a few things.
The emails you receive are sent to let you know that your healthcare team has updated your record. PKB is a patient-controlled, secure, digital copy of the information in your hospital record. It allows you to view updates instantly instead of waiting for letters.
If you’re having trouble logging in or would like to adjust your email preferences, we’re happy to help.
Please get in touch with our support team 📧: help@patientsknowbest.com.
Lisa
Patients Know Best
I can always rely on PKB
I can always rely on PKB to keep me updated with my forthcoming appointment.
November 15, 2024
Unprompted review
Reply from Patients Know Best
Thank you, Phil, for your 5-star review! 🌟 We’re so pleased to hear that PKB is helping you to stay informed and manage your health appointments 😊
Best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Patients Know Best - highly recommended
I have used Patients Know Best for a number of years.if you want to keep records of your medical appointments, prescriptions, reports etc there is no better system. My recent personal experience with Patients Know Best staff in resolving an issue reinforced the efficiency and friendly service which supports the value of the overall program. I can highly recommend Patient Knows Best. The service provided by the staff is second to none.
November 13, 2024
Unprompted review
Reply from Patients Know Best
Thank you for your the wonderful feedback! 🌟 We’re delighted to hear that PKB has been so valuable to you, and that our support team were there to provide efficient support when you needed it. 😊
Best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
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Honestly, it's pretty great
Honestly, I think it's pretty great, and it gets better all the time. Being able to see my latest results , see graphs of trends, the new 'search for tests' clever drop-down, amazing. Remember when only your doctor had access to this!
I just wish I got my hospital tests in the same place
November 14, 2024
Unprompted review
Reply from Patients Know Best
Thank you so much for your lovely feedback, Peter! 😊 We’re thrilled to hear that you’re finding the platform helpful and enjoying our latest test result features. It’s great to see patients like you are benefitting from having more control and visibility over their health information.
Please reach out to us on help@patientsknowbest.com, we'll let you know if your hospital is planning to use PKB in the near future, and we can advise on how you can share your record with professionals individually if you wish.
We’re always working to make PKB even better, so it’s wonderful to know the improvements are making a difference for you. Thank you for taking the time to share your experience!
Lisa
📧: help@patientsknowbest.com
Patients Know Best
A shambles and a farce
A dysfunctional and a cheaply made and designed platform that gets worse as time goes by. Display of results is inconsistent, there is no history of the results, no search function and the appointments, even the very old ones, are crammed between the most recent blood results. That says a lot.
At times, PKB send you an email alert that your data has been updated. You click on the link to see what has happened and it takes you to the personal data page whereby nothing has been changed. The people behind it are unprofessional, clueless and have no interest in the patients and/or their benefit. Their reply, always, is "we are aware of the problem and we are working to fix it". The old problems are never fixed and new problems result in this process. An absolute shambles and an insult to the NHS to have an association with such low quality service.
PS: their uselessness has exceeded all measures. See their reply. Even when they cut and paste they chose redundant information. Low IQ, inability to read and their actions add insult to injury. They are an absolute disaster and a disgrace. NHS do fire PKB and get decent people to start afresh with modern and compatible platform and hire those who are keen to do a good job. We deserve better. Shame on you PKB and big time. You make me sick!
November 1, 2024
Unprompted review
Reply from Patients Know Best
Thank you for your feedback. We're sorry to hear about your experience, and I’d like to provide some clarity to help you make the most of PKB.
Notifications Panel: The panel on your homepage shows recent updates to tests, messages, and appointments. To see detailed information for each data type, click the icons below (e.g., “Appointments” or "Tests") to navigate directly to each section.
Test Results: On the “Tests” page, you’ll find a “Latest” view with recent results and a “Trend” view that tracks changes over time. Clicking on a test opens a detailed history, including a graph for visual tracking. You can also use the search bar in this section to quickly locate specific tests.
Email Notifications: PKB notifications inform you of new entries or updates in your record, such as new test results, and include a link to log into the relevant page. When demographic information is updated, an 'update to your profile' notification may be sent. We’re currently resolving a bug that may trigger notifications for some minor backend demographic updates, and we apologise for any inconvenience this may have caused. Demographic updates are limited to one notification per day by default, and you have the option to change your notification preferences (in your profile) to time-sensitive data only, if you wish.
PKB’s mission is to empower patients with access to and control over their health information. We care and we’re here to support you. Please reach out to our support team as we'd like to help.
Warm regards,
Lisa
📧: help@patientsknowbest.com
Take utmost care who you want to have…
Take utmost care who you want to have your medical records. Hovering in the background is an American insurance company waiting to take control. I would never freely give my medical records to a company that is profit generated. My Health Centre released my medical records without my permission even though I had completed a form to keep my medical records at the Health Centre
August 11, 2024
Unprompted review
Reply from Patients Know Best
Thank you for sharing your concerns. I’m sorry to hear how unsettling this has been for you, and I’d like to help clarify a few points.
PKB is an independent social enterprise, proud to be a B Corporation, meaning we’re driven by a social mission to empower patients and improve healthcare.
NHS/healthcare providers store and manage patient records as part of delivering care. Often records are stored on paper or in various systems that patients are unable to access. PKB was created to put the patient in control, it's securely hosted, encrypted and only you decide who else can access your record once you've registered.
If you have any concerns, please don’t hesitate to contact us at help@patientsknowbest.com, and we’ll be happy to assist further.
Lisa
📧: help@patientsknowbest.com
Patients Know Best
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